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The Sequoia Project is elevating consumer engagement, because the consumer voice matters.
The Consumer Voices Workgroup will help The Sequoia Project better understand the barriers consumers face in accessing, using and sharing their health information and to inform strategies to address these barriers. The Consumer Voices Workgroup will share experiences, priorities and recommendations which will be used by the future Consumer Engagement Strategy Workgroup to develop short and long-term cross-industry strategies for consumer engagement, access, education, and policy.
The Interoperability Matters Leadership Council chartered the Consumer Voices Workgroup to work in the following phases:
Over the next 5 months consumers will share their experiences, priorities, and recommendations for accessing, using, and sharing their health records. The goal of the group is to:
This group will be open to all members of The Sequoia Project. The goal of the group is to:
Be sure to stay up-to-date by signing up for regular updates involving Interoperability Matters.
Consumer Voices Workgroup members are engaged patients and caregivers from various regions within the continental United States. Over 87% of the workgroup members are caregivers to patients aged 1-81+.
Learn first-hand from our workgroup members why it is important to develop strategies to make it easier for all consumers to access, use, and share health data while keeping it private and secure.
A few of the Consumer Voices Workgroup members shared their personal experiences with accessing, sharing, and using their health records.
The Consumer Voices Workgroup recently presented at The Sequoia Project’s 2022 Annual Meeting. During the presentation, the panel discusses patient and caregiver experiences trying to access health data. The goal of the presentation was to shine a spotlight on patient and caregiver stories to spur decision-makers to overcome these urgent challenges starting in 2023.