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Interoperability Matters

Consumer Voices Workgroup

The Sequoia Project is elevating consumer engagement, because the consumer voice matters.

Helping to bring the consumer's voice to The Sequoia Project's work

The Consumer Voices Workgroup will help The Sequoia Project better understand the barriers consumers face in accessing, using and sharing their health information and to inform strategies to address these barriers. The Consumer Voices Workgroup will share experiences, priorities and recommendations which will be used by the future Consumer Engagement Strategy Workgroup to develop short and long-term cross-industry strategies for consumer engagement, access, education, and policy.

Workgroup Deliverables

Two Work Phases

The Interoperability Matters Leadership Council chartered the Consumer Voices Workgroup to work in the following phases:

Phase 1

Consumer Voices Workgroup

Over the next 5 months consumers will share their experiences, priorities, and recommendations for accessing, using, and sharing their health records. The goal of the group is to:

Phase 2

Consumer Engagement Strategy Workgroup

This group will be open to all members of The Sequoia Project. The goal of the group is to:

Interested in Learning More About the Workgroup?

Be sure to stay up-to-date by signing up for regular updates involving Interoperability Matters. 

Consumer Voices Workgroup Roster

Consumer Voices Workgroup members are engaged patients and caregivers from various regions within the continental United States. Over 87% of the workgroup members are caregivers to patients aged 1-81+. 

Workgroup Co-Chairs
Shannah

Shannah Koss

View Bio

Grace

Grace Cordovano

View Bio

Additional Members
Mallory

Mallory

Ron

Ron

Antoinette

Antoinette

Rose

Rose

Shamekka

John

John

Marshay

Marshay

Mark

Mark

Why Consumer Voices Matter

Learn first-hand from our workgroup members why it is important to develop strategies to make it easier for all consumers to access, use, and share health data while keeping it private and secure.

Hear from Workgroup Members Themselves

A few of the Consumer Voices Workgroup members shared their personal experiences with accessing, sharing, and using their health records.

Consumer Voices Workgroup Presentation

The Consumer Voices Workgroup recently presented at The Sequoia Project’s 2022 Annual Meeting. During the presentation, the panel discusses patient and caregiver experiences trying to access health data. The goal of the presentation was to shine a spotlight on patient and caregiver stories to spur decision-makers to overcome these urgent challenges starting in 2023.

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What can we help you find?

What We Are Doing

Consumer Voices

Workgroup organized to assist understanding the barriers consumers face in accessing health information.

Consumer Engagement

Workgroup organized to help propose and develop strategies to meet consumer healthcare needs.

Data Usability

Workgroup that targets improvements necessary to enable semantic interoperability of health information.

Information Sharing

Workgroup focused on the on-the-ground approaches to facilitate information sharing.

Payer-to-Payer API

Workgroup Inactive Workgroup that explores and recommends methods to improve interoperability amongst payers.

Pharmacy

Workgroup that is committed to improving pharmacy interoperability.

Privacy and Consent

Workgroup focused on supporting proper information exchange that protects consumers privacy.

Public Health

Community of Practice focused on providing participants with best practices at the intersection of public health.

Steering Committee

Committee is focused on facilitating and prioritizing the work of the Interoperability Matters Workgroups.

About The Sequoia Project

Learn about our history and meet the team that makes The Sequoia Project unique in the healthcare industry

Member List

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Member Events

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Member Benefits

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Swag Store

Visit The Sequoia Project swag store to purchase branded merchandise and apparel.

Sponsorships

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Services

Advisory Services

Discover how The Sequoia Project’s Advisory Services can support your organization with tailored projects and provide expert guidance on interoperability initiatives.

Education Services

Bring The Sequoia Project experts to your organization to deliver education on interoperability and Health IT, tailored to your team’s needs and goals.

Testing Services

Engage The Sequoia Project team to support interoperability and health IT testing initiatives.

Partnerships

Data Usability Taking Root Movement

Learn how the Data Usability Taking Root Movement is advancing healthcare interoperability by improving the quality, consistency, and usability of shared health data across the industry.

Privacy and Consent Roundtable

The Sequoia Project is convening privacy & consent advocates in recognition of various initiatives underway to ensure health data is exchanged with proper patient consent.

Information Blocking Compliance Training Bundle

Role-based education that helps healthcare organizations understand and comply with the Information Blocking Rule established under the 21st Century Cures Act.

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Additional Resources

Resource Library

Discover the latest resources for advancing interoperability in your organization

Public Affairs or Policy Matters

Explore our public comments on Health IT, interoperability, information sharing, TEFCA, and healthcare policy initiatives.

Feedback Opportunities

Share your comments on Interoperability Matters Workgroup draft publications and add your insights to open surveys.

Contact Us

Contact us to learn more about health data interoperability, membership, initiatives, and how to get involved.

The Sequoia Project & Carequality

Oct 28-29 | Austin, TX
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