Interoperability Matters

Consumer Engagement Strategy Workgroup

Established by the Interoperability Matters Leadership Council, the Consumer Engagement Strategy Workgroup will develop strategies to meet consumer needs.

Workgroup Purpose

The Consumer Engagement Strategy Workgroup will gain an understanding of consumer experiences, priorities, and recommendations; and develop short and long-term cross-industry strategies for meeting consumer needs. The recommended strategies will be provided to the Interoperability Matters Leadership Council and Sequoia Board.

Deliverables:

Review, evaluate and translate the Consumer Voices Workgroup recommendations into cross-industry strategies to advance consumer engagement, access education, and related policy change.

Focus Areas

Two Work Phases

The Sequoia Project identified two consumer engagement goals: listening to consumers and acting on what we heard.

Phase 1

Consumer Voices Workgroup

Consumers will share their experiences, priorities, and recommendations for accessing, using, and sharing their health records. The goal of the group is to:
Phase 2

Consumer Engagement Strategy Workgroup

This group is open to all members of The Sequoia Project. The goal of the group is to:

Personal Health Data

What Patients Need

Personal Access

All of my health information is readily accessible to me and my caregivers in one place when I need it.

Care Team Access

All of my data is readily accessible to all of my care team through their EHR, regardless of their practice affiliation.

Usefulness

I can understand my data and health information makes sense to me.

Awareness and Education

I understand my rights to data access, how and by whom my data is used and can advocate for myself and others.

Moving to Action

Goal: Patients facing a health crisis know how to access their data, who to contact if they can’t and where to report violations of their data access rights.

Objectives

Drive industry-wide excellence in notifying patients of their data access rights

Create materials that can be adopted by industry and advocacy groups about data access rights

Actively promote and incentivize adoption of data rights awareness

Tactical Plan

Best Practices

Develop industry-wide “best practices” and recommendations for providing readily accessible and obvious information to consumers about their rights to access their data

Industry Pledge

Develop industry “pledge” to adopt recommended best practices

Tool Kit

Create tool kit with informational and digital assets that can be adopted by industry and placed where patients can find them in their time of need

Policy Proposal

Create recommendation to ASTP/ONC to require placement of information in obvious, accessible location in EHR for all certified HIT

Workgroup Leadership

Workgroup Co-Chairs

Brian Van Wyk

Epic

Cathriona Dolphin-Dempsey

Stanford Health Care

Anna McCollister

Four Lights Consulting, LLC

Workgroup Roster

American Medical Association

Assistant Secretary for Technology Policy

AthenaHealth

Azuba Corporation

BluIP

Ciitizen

Clinical Architecture

Consultants/Patient Advocates

Contexture

Cure SynGAP1

Deloitte

eClinicalWorks

eHealth Exchange

EHRA

Enlightening Results

Epic

FastenHealth

FindHelp

Global Genes

Government of DC

Hassanah Consulting

Hawai’i Pacific Health

HealthMark Group

Humana

IBM

inTandem Health

JHCP

Koss on Care LLC

Lifeline Biosciences

Marble

MatchRite

Michigan Health Information Network

MRO Corporation

Netsmart

New York Presbyterian

Oliver Wyman

OneRecord

Oracle Corp

Patientory

Rare Dots

Ruvos

Sandwych

Savvy Cooperative

Serving Communities HIO

Smile Digital Health

Stanford Health Care

Stoa Medical

The Marty Firm LLC

Verisma

WellConnector

 

Meeting Material and Recordings

View Slides 

Recording Not Available

Want to Join the Consumer Engagement Strategy Workgroup?

Ready to shape the future of consumer engagement and health IT interoperability?

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Why Consumer Voices Matter

Learn first-hand from our workgroup members why it is important to develop strategies to make it easier for all consumers to access, use, and share health data while keeping it private and secure.

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