Established by the Interoperability Matters Leadership Council, the Consumer Engagement Strategy Workgroup will develop strategies to meet consumer needs.
The Sequoia Project’s Interoperability Matters Consumer Engagement Workgroup developed the Best Practices and Implementation Toolkit. In recognition of Patient Experience Week, the workgroup hosted a free public webinar that covered the details and importance of this toolkit.
We’re solving the “last mile problem” for data patient access. Our vision is to make health data work better for consumers! We work collaboratively to develop tools, propose solutions and recommend actions needed to ensure consumers can access, use and share their electronic health data in ways that will decrease patient workload and burden.
Review, evaluate and translate the Consumer Voices Workgroup recommendations into cross-industry strategies to advance consumer engagement, access education, and related policy change.
Providers need easy-to-follow processes and tools to facilitate timely access to electronic health information for patients. These processes and tools should be readily accessible and easy to locate, understand and use by any patient who needs timely access to their data. The draft best practices and toolkit is divided into six sections which are aligned with key elements of Best Practices and an implementation checklist.
These include:
The Sequoia Project identified two consumer engagement goals: listening to consumers and acting on what we heard.
This group is open to all members of The Sequoia Project. The goal of the group is to:
All of my health information is readily accessible to me and my caregivers in one place when I need it.
All of my data is readily accessible to all of my care team through their EHR, regardless of their practice affiliation.
I can understand my data and health information makes sense to me.
I understand my rights to data access, how and by whom my data is used and can advocate for myself and others.
Goal, Our Desired End State: Work collaboratively to develop tools, propose solutions and recommend actions needed to ensure consumers can access, use and share their electronic health data in ways that will decrease patient workload and burden.
Drive industry-wide excellence in facilitating timely access to all personal electronic health information
Give guidance to and provide materials for the industry and providers on how to inform and empower patients to access their data in a timely manner
Actively promote and incentivize industrywide adoption of practices aimed at enabling timely access to all personal data
Develop industry-wide “best practices” and recommendations for simplifying all aspects of patient data access to reduce patient burden, improve patient experience and boost provider efficiency
Create tool kit with that provides guidance, resources and tools to providers to facilitate adoption of Best Practices
Develop industry “pledge” to adopt recommended best practices
Create recommendations to ASTP/ONC to implemented policy incentivize improvements to reduce patient administrative burden
Stanford Health Care
Four Lights Consulting, LLC
AHIMA
American Medical Association
Azuba Corporation
BluIP
Ciitizen
ClearChartAI
Consultants/Patient Advocates
Contexture
Cure SynGAP1
Deloitte
eClinicalWorks
EHRA
Epic
FastenHealth
FindHelp
Global Genes
Government of DC
Hassanah Consulting
Hawai’i Pacific Health
HealthMark Group
Humana
IBM
Inflection Medicine
inTandem Health
JHCP
Kno2
Koss on Care LLC
Lifeline Biosciences
Marble
MatchRite
Michigan Health Information Network
MRO Corporation
Netsmart
New York Presbyterian Hospital
Office of the National Coordinator for Health Information Technology
Oliver Wyman
OneRecord
Optum
Oracle Health
Patientory
Rare Dots
Ruvos
Sandwych
Serving Communities HIO
Smile Digital Health
Solverein
Stanford Health Care
Stoa Medical
The Marty Firm LLC
Verisma
WellConnector
Recording Not Available
Learn first-hand from our workgroup members why it is important to develop strategies to make it easier for all consumers to access, use, and share health data while keeping it private and secure.
Ready to shape the future of consumer engagement and health IT interoperability?
Complete the form to be contacted about joining this vital workgroup.
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Interoperability Matters a public-private cooperative solving discrete health information exchange challenges through a variety of workgroups and initiatives. Learn More
Workgroup organized to assist understanding the barriers consumers face in accessing health information.
Workgroup organized to help propose and develop strategies to meet consumer healthcare needs.
Workgroup that targets improvements necessary to enable semantic interoperability of health information.
Workgroup focused on the on-the-ground approaches to facilitate information sharing.
Workgroup Inactive Workgroup that explores and recommends methods to improve interoperability amongst payers.
Workgroup that is committed to improving pharmacy interoperability.
Workgroup focused on supporting proper information exchange that protects consumers privacy.
Community of Practice focused on providing participants with best practices at the intersection of public health.
Committee is focused on facilitating and prioritizing the work of the Interoperability Matters Workgroups.
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