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Home » Interoperability Matters » Consumer Engagement Strategy Workgroup
Established by the Interoperability Matters Leadership Council, the Consumer Engagement Strategy Workgroup will develop strategies to meet consumer needs.
The Consumer Engagement Strategy Workgroup will gain an understanding of consumer experiences, priorities, and recommendations; and develop short and long-term cross-industry strategies for meeting consumer needs. The recommended strategies will be provided to the Interoperability Matters Leadership Council and Sequoia Board.
Review, evaluate and translate the Consumer Voices Workgroup recommendations into cross-industry strategies to advance consumer engagement, access education, and related policy change.
The Sequoia Project identified two consumer engagement goals: listening to consumers and acting on what we heard.
This group is open to all members of The Sequoia Project. The goal of the group is to:
All of my health information is readily accessible to me and my caregivers in one place when I need it.
All of my data is readily accessible to all of my care team through their EHR, regardless of their practice affiliation.
I can understand my data and health information makes sense to me.
I understand my rights to data access, how and by whom my data is used and can advocate for myself and others.
Goal: Patients facing a health crisis know how to access their data, who to contact if they can’t and where to report violations of their data access rights.
Drive industry-wide excellence in notifying patients of their data access rights
Create materials that can be adopted by industry and advocacy groups about data access rights
Actively promote and incentivize adoption of data rights awareness
Develop industry-wide “best practices” and recommendations for providing readily accessible and obvious information to consumers about their rights to access their data
Develop industry “pledge” to adopt recommended best practices
Create tool kit with informational and digital assets that can be adopted by industry and placed where patients can find them in their time of need
Create recommendation to ASTP/ONC to require placement of information in obvious, accessible location in EHR for all certified HIT
Epic
Stanford Health Care
Four Lights Consulting, LLC
Henry Archibong, HealthMark Group
Allison Aubuchon, WellConnector
Jennifer Blumenthal, OneRecord
Whitney Bowman-Zatzkin, Rare Dots
Stephanie Broderick, Clinical Architecture
Hans Buitendijk. Oracle Corp
Hugo Campos, Consultant/Patient Advocate
Bart Carlson, Azuba Corporation
Barbara Carr, Verisma
Dan Chavez, Serving Communities HIO
Grace Cordovano, Enlightening Results
David Corso, Azuba Corporation
Jeff Coughlin, American Medical Association
Tammy Coutts, EHRA
Dave Debronkart, Consumer/Patient Advocate
Cathriona Dolphin-Dempsey, Stanford Health Care
Tina Feldmann, eHealth Exchange
John Gaines, MatchRite
Eddie Gonzalez-Loumiet, Ruvos
Katie Goulette, MiHIN
Mike Graglia, Cure SynGAP1
Thomas Grannan, Azuba Corporation
Joseph Hernandez, BluIP
Jen Horonjeff, Savvy Cooperative
Gena Jarosch, MiHIN
Nabbil Khan, Lifeline Biosciences
Shannah Koss, Koss on Care LLC
Allison Kozee, MRO Corporation
Jason Kulatunga, FastenHealth
Amy Laine, Sandwych
Virginia Lorenzi, New York Presbyterian
Tushar Malhotra, eClinicalWorks
Shamekka Marty, Consumer/Patient Advocate
Josh Mast, Oracle Corp
Elizabeth McElhiney, Verisma
Chris McFarlane, Patientory
Deven McGraw, Ciitizen
Lana Moriarty, ONC
Tiffany O’Donnell, MRO Corporation
Adaeze Okonkwo, Government of DC
Melis Ozturk, IBM
Eric Pan, Stanford
Josh Parker, AthenaHealth
AJ Peterson, Netsmart
Aileen Rowan, Oliver Wyman
Sam Segall, Datavant
Paul Seville, Deloitte
Alexis Shaner, Hawai’i Pacific Health
Stacey Tinianov, Consumer/Patient Advocate
Jaffer Traish, FindHelp
Janice Tufte, Hassanah Consulting
Brian Van Wyk, Epic
Vanessa Vogel-Farley, Global Genes
Diana Warner, MRO Corporation
Duncan Weatherston, Smile Digital Health
Carol Zinder, InTandem Health
Recording Not Available
Ready to shape the future of consumer engagement and health IT interoperability?
Complete the form to be contacted about joining this vital workgroup.
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Learn first-hand from our workgroup members why it is important to develop strategies to make it easier for all consumers to access, use, and share health data while keeping it private and secure.
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Copyright © 2024 The Sequoia Project. All rights reserved.