Interoperability Matters

Privacy & Consent Workgroup

Established by the Interoperability Matters Leadership Council, the Privacy & Consent Workgroup will identify initial steps to further propel the healthcare community towards supporting proper information exchange that appropriately protects privacy.


Workgroup Purpose

While information sharing has become the standard in U.S. health care, the inherently sensitive nature of health information creates significant operational challenges for health information exchange. The Workgroup will consider the broader needs of public and private sector stakeholders, while focusing on implementation-level and operational aspects of privacy and consent related activities.

Propelling the Healthcare Community Forward

This Workgroup will serve as a Community of Practice by convening Sequoia Project’s members and subject matter experts focused on information exchange that appropriately protects privacy.

Initial Areas of Focus

Given both the increase in health information exchange and the growing attention to the sensitivity of health information, the issues of consent management and data segmentation for privacy come to the forefront. Practical and universal solutions are needed to maintain and build on the growing momentum toward interoperability.

The Workgroup will focus initially on the following topics: 

Computable Consent

Those receiving requests for information must determine what level of exchange is permitted and when consent may be required. If an individual’s consent (or authorization) is required for sharing information in each circumstance, the process to obtain and electronically share consent in a computable format is not yet standardized.

Data Segmentation for Privacy

Growing concerns and attention to the sensitivity of health information heightens the need for tools that allow individuals and data holders to identify information deemed particularly sensitive when sharing records.

Building on the Efforts of Others

The Workgroup will begin with a landscape review to understand existing efforts and regulations. The intent is to leverage and learn from the efforts of others with a focus on identifying and addressing implementation concerns.

Workgroup Co-Chairs

Steven Lane

Health Gorilla

Deven McGraw


Workgroup Roster

American Health Information Association (AHIMA)

  • Lauren Riplinger
  • Andrew Tomlinson

American Medical Association (AMA)

  • Jeff Coughlin

Atlas Health Hub

  • Britt Bohanno


  • Bart Carlson

Blue Cross Blue Shield Association (BCBSA)

  • Devi Mehta

Cambridge Health Alliance

  • Hannah Galvin


  • Deven McGraw

Contra Costa Health

  • Tatum Sihina

Consultant, Senior Privacy and Integration Specialist

  • Mohammad Jafari


  • Rosh Singh

CRISP Shared Services

  • Caitlin Riccobono


  • Elizabeth Delahoussaye


  • Susan Clark


  • Aaron Tait
  • Matt Molisani


  • Jaffer Traish

HCA Healthcare

  • Hilary Greer
  • William Humphrey

Health Gorilla

  • Steven Lane

Henry Ford Health

  • Julie Lowry

Indiana Health Information Exchange (IHIE)

  • Alisa Kuehn


  • Matt Becker


  • Dennis Giokas

MRO Corp

  • Mo Weitnauer
  • Tucker Bair


  • AJ Peterson

New Jersey Innovation Institute

  • Helen Oscislawski
  • Jennifer D’Angelo

New York eHealth Collaborative (NYeC)

  • Samuel Roods


  • Daniel Werlin


  • Lacey Millsap

Office for Civil Rights (OCR)

  • Melanie Fontes Rainer
  • Tim Noonan

Office for Civil Rights (OCR)

  • Melanie Fontes Rainer
  • Tim Noonan

Office Of the National Coordinator (ONC)

  • Kathryn Marchesini


  • Hans Buitendijk

Orion Health

  • Laurie Peters

Santa Cruise Health Information Organization (SCHIO)

  • Daniel Chavez


  • Lynne Nowak

US Deptartment of Veterans Affairs

  • Peggy Pugh
  • Lynne Harbin


  • Elizabeth McElhiney
  • Barbara Carr

YoCierge Inc

  • George Bessenyei

Velatura HIE Corporation

  • Mel Soliz

Sequoia Staff

  • Chantal Worzala
  • Lindsey Elkind
  • Kathryn Lucia
  • Anna McCollister – Liaison to the Consumer Engagement Strategy Workgroup

Join the Workgroup

Ready to drive the healthcare community forward? Save your seat – Registration is open until 11/30/23.

Sequoia Project members and subject matter experts are eligible to participate. Complete the form today to be contacted about joining this vital workgroup.

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