Copyright © 2024 The Sequoia Project. All rights reserved.
Established by the Interoperability Matters Leadership Council, the Privacy & Consent Workgroup will identify initial steps to further propel the healthcare community towards supporting proper information exchange that appropriately protects privacy.
While information sharing has become the standard in U.S. health care, the inherently sensitive nature of health information creates significant operational challenges for health information exchange. The Workgroup will consider the broader needs of public and private sector stakeholders, while focusing on implementation-level and operational aspects of privacy and consent related activities.
This Workgroup will serve as a Community of Practice by convening Sequoia Project’s members and subject matter experts focused on information exchange that appropriately protects privacy.
Given both the increase in health information exchange and the growing attention to the sensitivity of health information, the issues of consent management and data segmentation for privacy come to the forefront. Practical and universal solutions are needed to maintain and build on the growing momentum toward interoperability.
Those receiving requests for information must determine what level of exchange is permitted and when consent may be required. If an individual’s consent (or authorization) is required for sharing information in each circumstance, the process to obtain and electronically share consent in a computable format is not yet standardized.
Growing concerns and attention to the sensitivity of health information heightens the need for tools that allow individuals and data holders to identify information deemed particularly sensitive when sharing records.
The Workgroup will begin with a landscape review to understand existing efforts and regulations. The intent is to leverage and learn from the efforts of others with a focus on identifying and addressing implementation concerns.
Health Gorilla
Ciitizen
American Health Information Association (AHIMA)
American Medical Association (AMA)
Atlas Health Hub
Azuba
Blue Cross Blue Shield Association (BCBSA)
Cambridge Health Alliance
Ciitizen
Contra Costa Health
Consultant, Senior Privacy and Integration Specialist
Cozeva
CRISP Shared Services
Datavant
DirectTrust
Epic
findhelp
HCA Healthcare
Health Gorilla
Henry Ford Health
Indiana Health Information Exchange (IHIE)
Kno2
Marble
MRO Corp
Netsmart
New Jersey Innovation Institute
New York eHealth Collaborative (NYeC)
NextGen
OCHIN
Office for Civil Rights (OCR)
Office for Civil Rights (OCR)
Office Of the National Coordinator (ONC)
Oracle/Cerner
Orion Health
Santa Cruise Health Information Organization (SCHIO)
Surescripts
US Deptartment of Veterans Affairs
Verisma
YoCierge Inc
Velatura HIE Corporation
Sequoia Staff
Ready to drive the healthcare community forward? Save your seat – Registration is open until 11/30/23.
Sequoia Project members and subject matter experts are eligible to participate. Complete the form today to be contacted about joining this vital workgroup.
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Copyright © 2024 The Sequoia Project. All rights reserved.