Interoperability Matters

Privacy & Consent Workgroup

Established by the Interoperability Matters Leadership Council, the Privacy & Consent Workgroup will identify initial steps to further propel the healthcare community towards supporting proper information exchange that appropriately protects privacy.

Workgroup Purpose

While information sharing has become the standard in U.S. health care, the inherently sensitive nature of health information creates significant operational challenges for health information exchange. The Workgroup will consider the broader needs of public and private sector stakeholders, while focusing on implementation-level and operational aspects of privacy and consent related activities.

Propelling the Healthcare Community Forward

This Workgroup will serve as a Community of Practice by convening Sequoia Project’s members and subject matter experts focused on information exchange that appropriately protects privacy.

Initial Areas of Focus

Given both the increase in health information exchange and the growing attention to the sensitivity of health information, the issues of consent management and data segmentation for privacy come to the forefront. Practical and universal solutions are needed to maintain and build on the growing momentum toward interoperability.

The Workgroup will focus initially on the following topics: 

Computable Consent

Those receiving requests for information must determine what level of exchange is permitted and when consent may be required. If an individual’s consent (or authorization) is required for sharing information in each circumstance, the process to obtain and electronically share consent in a computable format is not yet standardized.

Data Segmentation for Privacy

Growing concerns and attention to the sensitivity of health information heightens the need for tools that allow individuals and data holders to identify information deemed particularly sensitive when sharing records.

2024 Essential Readings

Building on the Efforts of Others

The Workgroup will begin with a landscape review to understand existing efforts and regulations. The intent is to leverage and learn from the efforts of others with a focus on identifying and addressing implementation concerns.

Workgroup Co-Chairs

Steven Lane

Health Gorilla

Deven McGraw

Ciitizen

Workgroup Roster

American Health Information Association (AHIMA)

  • Lauren Riplinger
  • Andrew Tomlinson

 

American Medical Association (AMA)

  • Jeff Coughlin

 

Atlas Health Hub

  • Britt Bohanno

 

Azuba

  • Bart Carlson

 

Blue Cross Blue Shield Association (BCBSA)

  • Devi Mehta

 

Cambridge Health Alliance

  • Hannah Galvin

 

Ciitizen

  • Deven McGraw

 

Contra Costa Health

  • Tatum Sihina

 

Consultant, Senior Privacy and Integration Specialist

  • Mohammad Jafari

 

CRISP Shared Services

  • Caitlin Riccobono

 

 Datavant

  • Elizabeth Delahoussaye

 

DirectTrust

  • Susan Clark

 

Edifecs

  • Kevin Day

 

Epic

  • Aaron Tait
  • Matt Molisani

 findhelp

  • Jaffer Traish

 

HCA Healthcare

  • Hilary Greer

 

Health Gorilla

  • Steven Lane

 

Hello Heart

  • John Chobor

 

Henry Ford Health

  • Julie Lowry

 

Indiana Health Information Exchange (IHIE)

  • Alisa Kuehn

 

Kno2

  • Matt Becker

 

Marble

  • Dennis Giokas

 

MRO Corp

  • Mo Weitnauer
  • Tucker Bair

 

Netsmart

  • AJ Peterson
  • Krista Logan

 

New Jersey Innovation Institute

  • Helen Oscislawski
  • Jennifer D’Angelo

 

NextGen

  • Daniel Werlin

 

OCHIN

  • Lacey Millsap

 

Office for Civil Rights (OCR) Liaison

  • Tim Noonan

Office Of the National Coordinator (ONC) Liaison

  • Kathryn Marchesini

 

Oracle Cerner

  • Hans Buitendijk

 

Orion Health

  • Laurie Peters

 

Santa Cruise Health Information Organization (SCHIO)

  • Daniel Chavez

 

Surescripts

  • Lynne Nowak

 

US Deptartment of Veterans Affairs

  • Peggy Pugh
  • Lynne Harbin

 

Verisma

  • Elizabeth McElhiney
  • Barbara Carr

 

YoCierge Inc

  • George Bessenyei

 

Velatura HIE Corporation

  • Mel Soliz

 

Sequoia Staff

  • Chantal Worzala
  • Kathryn Lucia
  • Anna McCollister – Liaison to the Consumer Engagement Strategy Workgroup

Join the Workgroup

Ready to drive the healthcare community forward? Save your seat – Registration is open until 11/30/23.

Sequoia Project members and subject matter experts are eligible to participate. Complete the form today to be contacted about joining this vital workgroup.

"*" indicates required fields

Sign up for Interoperability Matters email notifications

Privacy Preference Center

Necessary

et-pb-recent-items-font_family, visitor_id, gdpr,

Advertising

ANID, APISID, CONSENT, HSID, OGP, OGPC, SAPISID, SEARCH_SAMESITE, SID, SIDCC,SSID,__Secure-3PAPISID, __Secure-3PSID, __Secure-3PSIDCC, __Secure-APISID, __Secure-HSID, __Secure-SSID, 1P_JAR, _ga

Analytics

pardot,

Other