Interoperability Matters

Consumer Engagement Strategy Workgroup

Established by the Interoperability Matters Leadership Council, the Consumer Engagement Strategy Workgroup will develop strategies to meet consumer needs.

Workgroup Purpose

We’re solving the “last mile problem” for data patient access. Our vision is to make health data work better for consumers! We work collaboratively to develop tools, propose solutions and recommend actions needed to ensure consumers can access, use and share their electronic health data in ways that will decrease patient workload and burden.

Deliverables:

Review, evaluate and translate the Consumer Voices Workgroup recommendations into cross-industry strategies to advance consumer engagement, access education, and related policy change.

Focus Areas

Two Work Phases

The Sequoia Project identified two consumer engagement goals: listening to consumers and acting on what we heard.

Phase 1

Consumer Voices Workgroup

Consumers will share their experiences, priorities, and recommendations for accessing, using, and sharing their health records. The goal of the group is to:
Phase 2

Consumer Engagement Strategy Workgroup

This group is open to all members of The Sequoia Project. The goal of the group is to:

Personal Health Data

What Patients Need

Personal Access

All of my health information is readily accessible to me and my caregivers in one place when I need it.

Care Team Access

All of my data is readily accessible to all of my care team through their EHR, regardless of their practice affiliation.

Usefulness

I can understand my data and health information makes sense to me.

Awareness and Education

I understand my rights to data access, how and by whom my data is used and can advocate for myself and others.

Moving to Action

Goal, Our Desired End State: Work collaboratively to develop tools, propose solutions and recommend actions needed to ensure consumers can access, use and share their electronic health data in ways that will decrease patient workload and burden.

Objectives

Drive industry-wide excellence in facilitating timely access to all personal electronic health information

Give guidance to and provide materials for the industry and providers on how to inform and empower patients to access their data in a timely manner

Actively promote and incentivize industrywide adoption of practices aimed at enabling timely access to all personal data

Tactical Plan

Best Practices

Develop industry-wide “best practices” and recommendations for simplifying all aspects of patient data access to reduce patient burden, improve patient experience and boost provider efficiency

Implementation Tool Kit

Create tool kit with that provides guidance, resources and tools to providers to facilitate adoption of Best Practices

Industry Pledge

Develop industry “pledge” to adopt recommended best practices

Policy Proposal

Create recommendations to ASTP/ONC to implemented policy incentivize improvements to reduce patient administrative burden

Workgroup Leadership

Workgroup Co-Chairs

Brian Van Wyk

Epic

Cathriona Dolphin-Dempsey

Stanford Health Care

Anna McCollister

Four Lights Consulting, LLC

Workgroup Roster

American Medical Association

Assistant Secretary for Technology Policy

Azuba Corporation

BluIP

Ciitizen

Clinical Architecture

Consultants/Patient Advocates

Contexture

Cure SynGAP1

Deloitte

eClinicalWorks

EHRA

Enlightening Results

Epic

FastenHealth

FindHelp

Global Genes

Government of DC

Hassanah Consulting

Hawai’i Pacific Health

HealthMark Group

Humana

IBM

inTandem Health

JHCP

Koss on Care LLC

Lifeline Biosciences

Marble

MatchRite

Michigan Health Information Network

MRO Corporation

Netsmart

New York Presbyterian Hospital

Oliver Wyman

OneRecord

Oracle Health

Patientory

Rare Dots

Ruvos

Sandwych

Serving Communities HIO

Smile Digital Health

Stanford Health Care

Stoa Medical

The Marty Firm LLC

Verisma

WellConnector

 

Meeting Material and Recordings

View Slides 

Recording Not Available

Want to Join the Consumer Engagement Strategy Workgroup?

Ready to shape the future of consumer engagement and health IT interoperability?

Complete the form to be contacted about joining this vital workgroup.

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Why Consumer Voices Matter

Learn first-hand from our workgroup members why it is important to develop strategies to make it easier for all consumers to access, use, and share health data while keeping it private and secure.

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