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Interoperability Matters

Information Sharing Workgroup

Experts across a wide range stakeholders types assembled to facilitate a constructive information sharing dialogue.

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Webinar Recording

Unlocking Compliance:

Tools for Compliance with the Information Blocking Rule (IBR)
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Expert Analysis of Information Blocking Rules and Information Sharing Strategies

This workgroup is focused is on the practical implications of the ONC’s Information Blocking Rules, as well as on-the-ground approaches to facilitate information sharing. Given the varied perspectives involved, we recognize that consensus may not always be possible. As a result, we look to capture varied perspectives to inform the group’s process and hopefully improve understanding across the stakeholders.

Workgroup charter
Meeting Materials (Member-Only)

Information Sharing Stakeholders

  • Hospitals
  • Provider organizations
  • Safety net providers
  • Clinicians Informaticists
  • HIM professionals
  • Consumers Health information networks (regional/nationwide)
  • Governmental agencies
  • Vendors
  • Legal
  • Privacy and policy experts

Information Sharing Toolkit

The Information Sharing Toolkit is an informational and educational toolkit intended to support the health care community’s commitment to compliance with the Information Blocking Rule (IBR), 42 USC 300jj-52 and 45 CFR Part 171.

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Information Sharing Resources

The Sequoia Project and its Information Sharing Workgroup created a suite of practical resources drawing from real world experience.

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Information Sharing Workgroup Roster

If you would like to receive more information about this work group, contact us.

AdventHealth

Altera Digital Health

American Health Information Association

American Medical Association

Carequality

Ciitizen

CommonSpirit Health

Contexture

CVS Health

Datavant

eClinicalWorks

eHealth Exchange

Epic

Evernorth

Health Gorilla

Intermountain Healthcare

Kno2

Medica

MRO Corporation

Netsmart

New Jersey Innovation Institute

New York-Presbyterian

OCHIN

OneRecord

Oracle Corporation

Stanford Health Care

Surescripts

The Ohio Health Information Partnership

Valley Children’s Healthcare

Velatura HIE Corporation

Verisma

White Plains Hospital

Three Work Phases

The Interoperability Matters Leadership Council, chartered the Information Sharing Workgroup to work in the following phases:

INFORMATION SHARING WORKGROUP

2022 Task Groups

The topic-based Task Groups are focused on completion of defined, time-bound deliverables, structured around a defined workplan. Members of the Workgroup will be asked and expected volunteer to participate in these Task Groups with the expectation that they will remain actively engaged in the Task Group throughout its duration and contribute to the production of deliverables by providing substantive feedback, subject matter expertise, and assistance with drafting work products.

2022 Task Group activities and deliverables included:

  • Better understand the scope of EHI;
  • Findings and recommendations;
  • Defining data elements and types;
  • Identifying operational approaches from varying perspectives; and
  • Identifying and compiling best practices for various types of Actors under information blocking.

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We collect names and email addresses.   HOW DO WE USE YOUR INFORMATION? We use personal information collected via our Services for the business purposes described below. We process your personal information for these purposes in reliance on our legitimate business interests, in order to enter into or perform a contract with you, with your consent, and/or for compliance with our legal obligations. We indicate the specific processing grounds we rely on next to each purpose listed below. We use the information we collect or receive: • To send you marketing and promotional communications. We may use the personal information you send to us for our marketing purposes, if this is in accordance with your marketing preferences. You can opt-out of our marketing emails at any time (see the “WHAT ARE YOUR PRIVACY RIGHTS” below).   WILL YOUR INFORMATION BE SHARED WITH ANYONE? We may process or share data based on the following legal basis: • Consent: We may process your data if you have given us specific consent to use your personal information in a specific purpose. • Legitimate Interests: We may process your data when it is reasonably necessary to achieve our legitimate business interests. • Performance of a Contract: Where we have entered into a contract with you, we may process your personal information to fulfill the terms of our contract. • Legal Obligations: We may disclose your information where we are legally required to do so in order to comply with applicable law, governmental requests, a judicial proceeding, court order, or legal process, such as in response to a court order or a subpoena (including in response to public authorities to meet national security or law enforcement requirements). • Vital Interests: We may disclose your information where we believe it is necessary to investigate, prevent, or take action regarding potential violations of our policies, suspected fraud, situations involving potential threats to the safety of any person and illegal activities, or as evidence in litigation in which we are involved. More specifically, we may need to process your data or share your personal information in the following situations: • Vendors, Consultants and Other Third-Party Service Providers. We may share your data with third party vendors, service providers, contractors or agents who perform services for us or on our behalf and require access to such information to do that work. Examples include: payment processing, data analysis, email delivery, hosting services, customer service and marketing efforts. We may allow selected third parties to use tracking technology on the Services, which will enable them to collect data about how you interact with the Services over time. This information may be used to, among other things, analyze and track data, determine the popularity of certain content and better understand online activity. Unless described in this Policy, we do not share, sell, rent or trade any of your information with third parties for their promotional purposes. • Business Transfers. We may share or transfer your information in connection with, or during negotiations of, any merger, sale of company assets, financing, or acquisition of all or a portion of our business to another company. • Third-Party Advertisers. We may use third-party advertising companies to serve ads when you visit the Services. These companies may use information about your visits to our Website(s) and other websites that are contained in web cookies and other tracking technologies in order to provide advertisements about goods and services of interest to you. See our Cookie Policy: https://sequoiaproject.org/privacy-policy/ for further information.   DO WE USE COOKIES AND OTHER TRACKING TECHNOLOGIES? We may use cookies and similar tracking technologies (like web beacons and pixels) to access or store information. Specific information about how we use such technologies and how you can refuse certain cookies is set out in our Cookie Policy: https://sequoiaproject.org/privacy-policy/.
  HOW LONG DO WE KEEP YOUR INFORMATION? We will only keep your personal information for as long as it is necessary for the purposes set out in this privacy notice, unless a longer retention period is required or permitted by law (such as tax, accounting or other legal requirements). No purpose in this policy will require us keeping your personal information for longer than 2 years.
When we have no ongoing legitimate business need to process your personal information, we will either delete or anonymize it, or, if this is not possible (for example, because your personal information has been stored in backup archives), then we will securely store your personal information and isolate it from any further processing until deletion is possible.
  HOW DO WE KEEP YOUR INFORMATION SAFE? We have implemented appropriate technical and organizational security measures designed to protect the security of any personal information we process. However, please also remember that we cannot guarantee that the internet itself is 100% secure. Although we will do our best to protect your personal information, transmission of personal information to and from our Services is at your own risk. You should only access the services within a secure environment.
  DO WE COLLECT INFORMATION FROM MINORS? We do not knowingly solicit data from or market to children under 18 years of age. By using the Services, you represent that you are at least 18 or that you are the parent or guardian of such a minor and consent to such minor dependent’s use of the Services. If we learn that personal information from users less than 18 years of age has been collected, we will deactivate the account and take reasonable measures to promptly delete such data from our records. If you become aware of any data we have collected from children under age 18, please contact us at dcondrey@sequoiaproject.org.
  WHAT ARE YOUR PRIVACY RIGHTS If you are resident in the European Economic Area and you believe we are unlawfully processing your personal information, you also have the right to complain to your local data protection supervisory authority. You can find their contact details here: http://ec.europa.eu/justice/data-protection/bodies/authorities/index_en.htm.
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  CONTROLS FOR DO-NOT-TRACK FEATURES Most web browsers and some mobile operating systems and mobile applications include a Do-Not-Track (“DNT”) feature or setting you can activate to signal your privacy preference not to have data about your online browsing activities monitored and collected. No uniform technology standard for recognizing and implementing DNT signals has been finalized. As such, we do not currently respond to DNT browser signals or any other mechanism that automatically communicates your choice not to be tracked online. If a standard for online tracking is adopted that we must follow in the future, we will inform you about that practice in a revised version of this privacy notice.
  DO CALIFORNIA RESIDENTS HAVE SPECIFIC PRIVACY RIGHTS? California Civil Code Section 1798.83, also known as the “Shine The Light” law, permits our users who are California residents to request and obtain from us, once a year and free of charge, information about categories of personal information (if any) we disclosed to third parties for direct marketing purposes and the names and addresses of all third parties with which we shared personal information in the immediately preceding calendar year. If you are a California resident and would like to make such a request, please submit your request in writing to us using the contact information provided below.
If you are under 18 years of age, reside in California, and have a registered account with the Services, you have the right to request removal of unwanted data that you publicly post on the Services. To request removal of such data, please contact us using the contact information provided below, and include the email address associated with your account and a statement that you reside in California. We will make sure the data is not publicly displayed on the Services, but please be aware that the data may not be completely or comprehensively removed from our systems.
  DO WE MAKE UPDATES TO THIS POLICY? We may update this privacy notice from time to time. The updated version will be indicated by an updated “Revised” date and the updated version will be effective as soon as it is accessible. If we make material changes to this privacy notice, we may notify you either by prominently posting a notice of such changes or by directly sending you a notification. We encourage you to review this privacy notice frequently to be informed of how we are protecting your information.
  HOW CAN YOU CONTACT US ABOUT THIS POLICY? If you have questions or comments about this policy, you may contact our Data Protection Officer (DPO), Debbie Condrey, by email at dcondrey@sequoiaproject.org, or by post to:
The Sequoia Project, Inc.
Debbie Condrey
8300 Boone Blvd. Suite 500
Vienna, VA 22182
United States
 
HOW CAN YOU REVIEW, UPDATE, OR DELETE THE DATA WE COLLECT FROM YOU?
Based on the laws of some countries, you may have the right to request access to the personal information we collect from you, change that information, or delete it in some circumstances. To request to review, update, or delete your personal information, please visit: marketing@sequoiaproject.org. We will respond to your request within 30 days.


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